Resource Links -
links to information and organizations involving ALS Amyotrophic Lateral Sclerosis.
Quick Facts About ALS also known as Lou Gehrig's Disease
- There is no cure for ALS (Amyotrophic Lateral Sclerosis)
- Death usually occurs within 3-5 years of diagnosis.
- Every day, an average of 15 people are newly diagnosed with ALS — more than 5,600 people per year.
- Amyotrophic lateral sclerosis, or ALS, is a disease of the nerve cells in the brain and spinal cord that control voluntary muscle movement.
- ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
- ALS can strike anyone.
- ALS is not contagious.
- There can be significant costs for medical care, equipment and home health caregiving later in the disease. It is important to be knowledgeable about your health plan coverage and other programs for which your may be eligible, including SSA, Medicare, Medical and Veteran Affairs benefits.
ALSTDI is the #1 nonprofit biotechnology organization dedicated to developing effective treatments for ALS.
The ALS Association - Washington DC - www.alsa.org
The Association’s nationwide network of chapters provides comprehensive patient services and support to the ALS community.
Caregiver Action Network - www.caregiveraction.org
The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the people who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
MDA - The Muscular Dystrophy Association - www.mda.org
MDA’s ALS Division is a world leader in the search for treatments and therapies for amyotrophic lateral sclerosis (ALS).
Susan Mast ALS Foundation - www.susanmastals.org
The mission of the Susan Mast ALS Foundation is to provide excellent support to ALS patients, families and caregivers living in West Michigan. Services focus on all areas of need for the regional ALS community, with special emphasis on respite care.
The ALS Foundation for Life - www.alsfoundation.org
The ALS Foundation for Life helps improve the quality of life for the men and women who are battling this disease on a daily basis, committed to providing funding for medical equipment, home modifications, and technological devices allowing patients some independence and sense of dignity.
ALS Hope Foundation - www.alshopefoundation.org
Founded in 1999 by Terry Heiman-Patterson, MD, and Jeffrey Deitch, PhD, the ALS Hope Foundation provides funding for the MDA/ALS Center of Hope, the first multidisciplinary ALS clinic in the country, and the Neuromuscular Research Laboratory at Drexel University College of Medicine.
Les Turner ALS Foundation - www.lesturnerals.org
The Les Turner Foundation serves more than 90% of the ALS population in the Chicago area.